Well, Sammy survived the Barium test at CCMC. They were looking for Hirshprungs. That is where the colin is very narrow after the opening of the bum and it is hard for stools to pass. Ok...too much info, I know..I know. Anyhow, He did great. They gave him some sleepy juice and he was glassy eyed as he watched Barney while the DR.did the test.
So....reports so far show no signs of Hirshsprungs. We will still wait to hear from the G.I. doc to get the clean bill. What does this mean?? Well, Sam just has low gut mobility from low tone in his G.I. track and will always have to be on Mirylax daily so he is not in pain from being constipated:( We have tried it all and the Mirylax seems to work.
Here are some pics ...Sam feel asleep after the procedure so we had to wait a bit longer for him to wake up:)
What a blast we had at the CDSC Annual Picnic at Hammonassett. We had loads of fun. The day was beautiful. The kids enjoyed the beach, sensory tables, beach balls, music, great food, ice cream and more. Here are a few pics to show you how much fun we had. Sam tuckered out and took a nice nap under the registration table!
So had to make a decision what to do for therapy for Sam for the 4 weeks he is out of school. We just don't want to do nothing as he has made such progress! 4 weeks is not a long time but can be long enough for regression.
I am trying to find out if the school is responsible for providing services even though there is no school in session? If anyone knows please reply back.
We are continuing with SLP, PT and OT for now and will be paying an out of network fee since the therapist are all out of network. These are the same therapist that work with Sam at school and they are fantastic. They work at Therapy Works in Old Lyme with Deb Dixon. Top notch.
We are also getting some serious orthotics for Sam..I will be posting about this soon!
It is hard to believe this is Sam's last week of ESY (Extended School Year). He will have had 5 weeks this summer and then start back up at CT College Childrens Progam in late August. As for his brothers, they are at Holiday Hill Day Camp this and last week. They are loving it! Big brother Cole is doing a sleep over Friday night and big brother Jack is doing an extended day til 8pm tomorrow night to be around the campfire. I am sure they will have youth memories of camp to last a lifetime!
We had a great day yesterday at Camp Harkness in Waterford. I must say, the beach is absolutely beautiful. The adaptive playscape is great and parking is a hop away from the beach. No long walking. The restrooms and changing area is clean and they have outside showers to rinse off. Lots of picnic area to barbeque if you wish. We had a great day:)
I sent in my information to get a lifetime FREE pass. Here is the link to check it out~
Ok...so as I am trying to update this blog on my laptop, Sam decided to blog on his own by gettting on the desktop. Why do you need a full diaper on to type?? I will tell you why...behind the half on diaper in front is a chair with PEE on it! HAHAHA! Oh well....that chair has seen better days any how! Time for an IKEA trip. I think when he climbed up in the chair the snaps came undone:)