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Sunday, December 27, 2009

Christmas 2009 - over already!


Wow....how does this all happen so fast? All the hype of the Hoidays and then poof..they are over:( Well, My Monkey Doodles are all enjoying their holiday gifts this year. The big one was for Cole and Jack. They received an Xbox 360. Yes, we gave in to that one. In return, I had to re-organize everything in the playrooms and TV console so I was able to do a lot of clean up! That feels great!

Sam received a new pound the ball wood toy, music box, leap frog catepillar, books and play dough. Oh..his big gift is a hanging indoor SWING from HABA toys. It holds up to a couple hundred lbs so we can sit and read to him in it. I think him and his brothers will love it. It will go in his and Jacks room once I am done re-painting it!

Here are the boys enjoying Christmas morning.

Friday, December 11, 2009

Ask and you shall receive and GLASSES!


Hello everyone,

I have been totally slacking on the blog with darn Fbook now!

So Sam is 3.5yrs old and yes, he has Down syndrome. A lot of kids his age with Ds to have words at this point. Sam has none:( I know he has so much to say. He does sign a lot but nothing vocal yet. Just some sounds. He has been getting speech 3x a week at his school and I just asked to revise his PPT or put an adendum on it for a couple reasons.
1. Sam is not talking and also has Apraxia. The recommended resources for him for that is SLP 4-5x a week. So I am asking for another 1/2hr of SLP for him.
2. GLASSES! Yes, Sam now has glasses.They are prisms. His vision is actually pretty good but he does not track well. I totally notice a difference on how he looks at thinks with them on! He is so cute I just can't stand it!
We have a new eye DR. who is a behavioral eye specialist. SHE ROCKS! I am taking Sam's big brothers to her to get checked out too! Who knows....I am thinking this is why Cole is having issues at concentrating. She works a lot with kids and schoolwork!

Soo......received a call today from the director of Sam's school and the PPT is scheduled for Jan 6th at 2:30. Anyone want to join me:) hehe. She said, Sam WILL be getting slp 4 times a week...we are going to add another 1/2hr! WAAAAAHHOOOOO!
Oh....did I mention...his mommy ROCKS! He needs the gift of speech so badly and they will do anything to help him there!

Ok..heres is a pic of Sammy in his new specs!

Thursday, October 22, 2009

New set of ear tubes and bronchoscopy


Well we spent a few hours up at CT Childrens this past Tuesday. Sam had to have his 3rd set of tubes and a bronchoscopy. He is doing great! He gets fluid often on his ears which can impact his hearing so we keep him as fluid free as possible with the tubes. Croup happens about 8 times during the cold season with Sam so the ENT wanted to check his airway for obstructions. Sam is free and clear. His air way is narrow but that is normal for a person with Down syndrome. We just have to dive into the liquid steroid for 2 days when it comes on, which btw is like 1am! This way we will avoid and ER visit.

So...as you can see Sam recovered beautifully! He is still nursing a little and need some TLC in recovery~ No wonder he bounced right back!

Sunday, October 11, 2009

My 2 older boys had tonsils and adenoids out


Well..I was brave and so were Cole and Jack this past Friday. They both had their tonsils and adenoids out. Dr.S said "those tonsils were like cottage cheese." SO glad they will not suffer like I did as a teen with strep and such!
Here they are...so happy before surgery! We are 3 days post op with a lot of ice cream and TLC.

Sunday, October 04, 2009

Down syndrome Awareness Month


October is Down syndrome Awareness Month. I am going to try to post daily to create more awareness for all the beautiful people out there with Down syndrome including my son Sam:)

Fact: The medical term for Down syndrome is : Trisomy 21